Disability Issues archives

I Blame the Kyriarchy

Happy May Day. As people around the world celebrate the struggles of laborers, and as many immigrants and supporters of immigrant rights set off on protest marches around this country, I wanted to link you to one of my favorite blog posts of the last week: Sudy’s explanation of kyriarchy, a concept coined by Elisabeth Schussler Fiorenza.

It’s a useful neologism for an idea that comes up a lot: multiple, overlapping, shifting pyramids of power. Try to focus too hard on just one, try to figure out with some kind of precision exactly which individuals are at the top, and you lose sight of the entire awful kyriarchy, that has any number of ways to crush people. It’s another trick that power structures play to distract you. I’ve heard this kind of concept discussed before — some people I know just use the word “hierarchies” to talk about this, and in some feminist writing this is what “patriarchy” means. But I like the word kyriarchy, not least because it doesn’t just focus on “fathers” as the top of the pyramid.

For me the word summons up a bizzare image of holographic, floating, disappearing and reappearing ancient step pyramids. Because that’s how complex the overlapping of power can be, and how surreal. Sometimes we talk about this stuff like patriarchy, white supremacy, or homophobia is a bunch of craggy old white guys having a meeting down the street where we can kick the doors in and turn over the table piled high with money and blood. Too bad that the history of oppressive cultural attitudes, social enforcement, the accumulation of religion and greed and control and security is never that simple. But don’t think I mean it’s all ideology either. Kyriarchy kills. Don’t let it get behind you — or under you.

Carnivals: Submit Now, Read Soon

Ms. Crip Chick (excellent blogger, btw) is hosting the 37th Disability Blog Carnival. Submissions are due on May 4th:

Here are some topic ideas!:
• What is disability identity? If you are disabled, do you feel disability is a part of you and your experience?
• What is disability culture to you? How do you put it out there or live it every day?
• Does disability intersect with your other identities (i.e. queer person, person of color, person of faith, etc.)?
• Is pride, community, or the Disability Rights Movement important to you? Why or why not?
• How do you feel about the word disabled? Is it a political term with power to you or do you despise it?
• Do you see disability outside of a rights framework (i.e. is disability something that is more than advocacy to you?)
• If you identify with the autistic acceptance movement, the deaf community, or other groups, how do you feel about disability? Many people do not want to associate with the disability community— how do you feel about this?
• Have you felt alienated from the disability community because of racism, exclusion because of your disability, the media or other factors? How has this affected your identity as a disabled person?

And some topic ideas for allies:
• Why is disability important to your work or politics?
• How do you feel about the Disability Rights Movement and what would you say to activists who downplay this movement or even disability as an important social justice issue?
• How do you see disability intersecting with feminism, reproductive justice, and other forms of oppression?
• What do you see in your role as an ally?

I think I’ve made it clear that I was disappointed with this thread on reproductive justice for disabled women. But I was also very impressed by the many who showed up to debate and defend against the ignorance and ugliness. I thought that some of you might be interested in contributing — and that for everyone who participated in the thread, this will be good and necessary reading when its done.

Speaking of carnivals that are particularly relevant as of late, Angry Black Woman is still accepting submissions to The Carnival of Allies. Submissions to this carnival are also due on May 4th, and I hope to see a lot of bloggers both big and small participating.

I call a Carnival. The Carnival of Allies. Where self-identified allies write to other people like themselves about why this or that oppression and prejudice is wrong. Why they are allies. Why the usual excuses are not good enough. I figure allies probably know full well all the many and various arguments people throw up to make prejudice and oppression okay. Things that someone on the other side of the fence may not hear. Address those things and more besides.

And when I say allies, I’m talking about any and every type. PoC can be (and should be) allies to other PoC, or to LGBTQ people if they are straight, or any number of other combinations. If you feel like you’re an ally and have something to say about that, you should submit to this carnival.

Like with the Disability Carnival, even if you don’t contribute because you don’t blog, don’t get the time or don’t feel educated/qualified enough to participate, I strongly hope that you will take the time to read the finished product. It’s going to be important stuff.

Illinois Court Rules Against Forced-Sterilization of Disabled Woman

Good news:

Disability rights advocates and medical ethicists praised a precedent-setting ruling Friday by the Illinois Appellate Court denying a bid to sterilize a mentally disabled woman against her will.

The woman, identified only as K.E.J. in court records, isn’t capable of raising a child on her own, but her guardian failed to prove that sterilization would be in her best interests, a three-judge panel in Chicago ruled unanimously.

[ . . . ]

The ruling was the first appellate opinion on the issue in Illinois.

 

“It’s extraordinarily significant” because it guarantees the disabled a court hearing, said Katie Watson, a Northwestern University professor who wrote a friend-of-the-court brief in the case on behalf of about two dozen medical ethicists.

[ . . . ]

K.E.J., 29, suffered a brain injury as a child when she was struck by a car. As a result, she cannot be left alone to operate a stove or perform most household chores.

The woman lives with her aunt, who was appointed as her guardian in the mid-1990s. In 2003, the aunt filed a “petition for tubal ligation” in Cook County Probate Court, arguing that her niece had a bad medical reaction to other birth-control methods.

At a bench trial in 2005, K.E.J. testified that she hoped one day to have children. “I will love taking care of them,” she said. “I will love, you know, to see how they grow.”

Seeing our atrocious history on forced sterilization in this country, I’d say that this ruling is oh, several decades overdue. I personally found both Pregnancy and Power and Killing the Black Body to be excellent primers on this subject as well as great books (but I’m sure that there are other great books I haven’t read that focus primarily on this issue — if you know them, leave the titles in the comments). But the simple version of the facts is that for many decades, America participated in and promoted forced sterilization of those who were deemed unfit to pass on their genes. That included women of color, the poor and those who were referred to as “feeble-minded” — disabled women (the phrase was also used to justify sterilization of other socially-scorned women, like those who were promiscuous or sex workers). Many people believe that this is still happening, like with the Norplant situation several years back (also covered in Killing the Black body), and there is more or less undeniable evidence that it is still happening to non-English-speaking women and the disabled.

We often treat disabled people as though they are undeserving of certain things in life, and sexuality and parenthood are pretty high up on that list. I do not think that being unable to raise your children on your own makes you unworthy of giving birth to and raising children. And I certainly don’t see any justification for a forced-sterilization of a woman who has made it clear that her wishes are otherwise; we need to see it as equally heinous to forced-birth and forced-abortion. By it’s very nature, a fundamental right is not conditional, and believing in reproductive justice means believing in it for all. And so I applaud the court and congratulate disability activists on this win; I can only hope that the success continues.

via FRIDA

A saner era? Myths about trans kids in schools, courtesy of FOX News

I’ve been following the media reactions to a story from Colorado about a young transgender girl in the 2nd grade and the usual gang of clowns are doing their “moral outrage” acts. It’s all fairly predictable, but it’s still fun and somewhat illuminating to pick apart what’s being said, so let’s take a look, shall we?

For starters, if you have questions about young trans kids (and many people do) an excellent resource is the TransYouth Families Advocates FAQ. This group was started by four mothers with transgender children, and their material is written for families who are trying to deal with and understand their kids’ struggles with gender.

The story in question is pretty straightforward. The school district has been working with TYFA and is doing a pretty great job at accommodating the trans child’s needs; they’re making sure pamphlets and counselors are available for students, parents, or faculty who have questions, and they’re making two of the school’s unisex bathrooms available for the trans child to use. Sounds fairly reasonable, right?

Well of course, Neil Cavuto on FOX News doesn’t think so. (Video courtesy of GLAAD.)

I can’t transcribe the whole thing, but he starts off by calling it a “bizzare story,” then brings on a child psychologist to serve as the punching bag for the usual interruptions and “what, are you crazy?” remarks that always seem to be the bread and butter over at FOX News. Let’s see how many myths and fabrications Cavuto managed to rack up:

1. “Bending over Backwards” Part 1: Schools have to build unisex bathrooms to accommodate kids like this, costing taxpayers thousands… or millions!

Yep, he actually says “millions” at one point. Fact-check: nobody has ever actually built a unisex restroom on behalf of trans people, and I have to say it’s not likely to happen anytime soon, either. The most “extreme” accommodations that I’ve ever heard of in this regard are reclassifying one or two bathrooms among mnay as unisex or all-gender — and that’s usually in settings like colleges, or LGBT community centers. And that’s not even the case here; the NBC affiliate in Colorado that reported this story simply said “two unisex bathrooms in the building will be made available.” Of course it’s easier to whip out the hyperbole and assume that expensive construction is going on, but anyone who did a little fact-checking would realize that trans people in these situations are usually asked to use an existing unisex bathroom. In a school, that’s often a single-occupancy bathroom in the teacher’s lounge or the nurse’s office.

And let’s be clear, this is usually a compromise. Trans employees and students aren’t asking to walk to the other end of the building, or in some cases take an elevator to a different floor than the one they work on, or go across the street or campus to a different building because they want to. Trans people are forced to because institutions can’t figure out another way to segregate us from people who might be uncomfortable sharing a restroom with us. Most trans people identify as one gender or another and tend to use the appropriate bathroom in say, a relatively anonymous public place like a movie theater or a restaurant. It’s only in contexts where coworkers, bosses, or other students know someone’s trans that this kind of problem comes up, along with the “unisex bathroom” compromise.

Approximate cost to taxpayers: possibly the price of one or two extra keys to bathrooms that are normally locked. Approximate cost to trans student: segregation from everyone else’s bathrooms, and less convenience since there are only two she can use. OK, what’s up next?
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In the interests of full disclosure

Apparently there was a bit of controversy–well ok, it was just one guy being a jerk–over my joy at getting some psych meds, as chronicled in this post. So, for the interests of full disclosure, I thought I’d let you all know the mind-bending blast I’ve been having, as my body gets used to the first few days of new drugs.

So, I’ve been prescribed prozac for depression and anxiety. It seems to have given me a dry mouth, nausea, and diarrhea, which has sent me running straight for the cannabis to counteract the effects of the prozac. So, the cure for the prozac is, well, pot. Which hey, lucky me.

And xanax, which believe it or not is considered fun by some people, who apparently actually will buy it at the street level. But I think you’d have to take several at a time, cuz this stuff doesn’t do anything exciting except make me woozy for about 10 minutes.

And ambien, because of previously discussed sleep issues.

So yeah, I’m defending to the death my right to take these medications that give me dry mouth, nausea, a full night’s sleep, and slight wooziness. I’m also defending my right to take the warfarin that keeps my blood from clotting, the cartia that is keeps my heart ticking, the amiodarone that keeps my heart ticking, and the toprol, which also keeps my heart ticking. Oh, and the diuretic that makes me pee every 5 minutes and makes my blood pressure drop til I feel like swooning (but keeps my legs and feet from swelling so much I can’t even wear shoes) and the potassium to replace what the diuretic leeches out of my system

And the weed, which makes it all bearable.

It’s not something you grow out of

Shark-Fu* has a post up at Shakesville and at Angry Black Bitch with a very important reminder:

A bitch was pleased to read that Senator Clinton would increase funding into autism research and education, but I’d like to see some of that money go to adult autistics too.

Oh, I know that the press is in love with autism right now because the revised spectrum has resulted in a better understanding of just how common an autism diagnosis is. But the press has failed…horribly…to point out that autism is not a childhood illness just because symptoms appear when a person is a child.

Autistics grow up. Education is great and more funding will certainly help the many families who can not afford programs that will help their child become an adult who can participate in society. But autistics grow up and that 1 in 150 estimated figure should be a warning bell to policy makers that major funding increases in adult care and job training programs are needed now and sure as shit will be needed in a few years.

So go forth and fund research for a cure and research into treatments. I hope all the candidates intend to fund education and expand the availability of those programs to all families. But all y’all need to know that the thousands of autistic adults who woke up autistic today and will, by the grace of God, wake up autistic tomorrow need a commitment to healthcare, job training, work programs and residential care.

I’ll say it one more time…autistics grow up.

It’s true, and it’s something all too many people forget. My nephew has autism, and I know my sister worries about how he’s going to function as an adult — will he live on his own? Will he be able to work? Given how difficult it’s been to get necessary services and accommodations from a school system required by law to provide them, what’s going to happen when he leaves school?

Read the whole thing.

____________
* Is that the best handle or what?

Miss Landmine Angola

misslandmine08.jpg

The Miss Landmine Angola competition is a pageant that seeks to celebrate female empowerment and expand definitions of beauty. I’m no huge fan of pageants, and I can understand arguments against adopting regressive practices like beauty contests even in an effort to challenge beauty norms. But I still think this is a pretty cool idea. Seeing women in bikinis isn’t exactly revolutionary; but seeing women whose bodies are outside of the thin, white, able-bodied ideal in bikinis can feel pretty ground-breaking. I especially like their Manifesto:

* Female pride and empowerment.
* Disabled pride and empowerment.
* Global and local landmine awareness and information.
* Challenge inferiority and/or guilt complexes that hinder creativity- historical, cultural, social, personal, African, European.
* Question established concepts of physical perfection.
* Challenge old and ingrown concepts of cultural cooperation.
* Celebrate true beauty.
* Replace the passive term ‘Victim’ with the active term ‘Survivor’

Can’t argue with that.

Thanks to Luther for the link.

Just because you call something satire, doesn’t mean it is.

Kat passed along to me yet another example of a “satirist” taking a stab at “A Modest Proposal” and failing, miserably, because said “satirist” fails to understand satire. This has been rampant at college papers lately; the latest was written by a high-school boy. The twist here is that the school paper, evidently staffed by editors equally as uninformed about satire as the author, published the piece. The principal, after having read the piece, seized 500 undistributed copies and created a newspaper advisory board. As a result of this, the Atlanta Journal-Constitution decided to run the column, meaning that Justin Jones’ poor excuse for satire has now been taken up as a freedom of speech issue.

For a millennium, the world has been plagued with stupid people corrupting society and bastardizing the value of life for all of mankind.

The intellectually handicapped have been reproducing at a substantially greater rate than those with a fully functional brain.

The problem of the unintelligent reproducing is, and has been, a serious threat to society that has gone unchecked for far too long. It is the responsibility of man to solve this problem before a reverse Darwinism takes effect.

It is depressing to think (especially at the high school age) that people with a high IQ are generally stereotyped as “geeks” or “nerds” because they choose to do more intellectually stimulating activities like homework, and reading, instead of those activities preferred by their peers like power lifting, full contact football without head protection, or crushing cans on one’s head. So while the intelligent are exiled from the masses, the ignorant are cherished and embraced.

Due to the substantial amount of low IQ reproduction and relatively low amount of high IQ reproduction, the intelligent become fewer and farther between.

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Is this a good enough reason? If not, what is?

Kat passed along this story from CNN that brings up all kinds of disturbing questions about bodily autonomy and disability and medical interventions:

LONDON, England — A mother is seeking to have the womb of her severely disabled daughter removed to prevent the 15-year-old from feeling the pain and discomfort of menstruation.

Doctors in Britain are now taking legal advice to see if they are permitted to carry out the hysterectomy on Katie Thorpe, who suffers from cerebral palsy.

But a charity campaigning for the disabled said on Monday the move could infringe human rights and would set a “disturbing precedent.”

Andy Rickell, executive director of disability charity Scope, told the Press Association: “It is very difficult to see how this kind of invasive surgery, which is not medically necessary and which will be very painful and traumatic, can be in Katie’s best interests.

Painful, invasive surgery on a disabled teenage girl to spare her from the “pain and discomfort of menstruation.” That, to me, sets a terrible precedent. There’s not much in the article that indicates that her periods are unusually heavy or painful, or that she’s got fibroids, or that she’s unable to take any sort of hormonal birth control. In any event, there are nonsurgical alternatives, or even less-invasive surgical interventions, like uterine cauterization.

I’m not really sure, in fact, what’s going on here. The mother swears it’s not about her:

Katie’s mother Alison Thorpe, who lives in Billericay, southern England, said the operation was in her daughter’s best interests.

“First of all, this is not about me. If it was about me, I would have given up caring for Katie a long, long while ago,” she told GMTV.

“It is about quality of life and for Katie to not have the associated problems of menstruation adds to her quality of life. It means she can continue with the quality of life we can give her now.

“Katie wouldn’t understand menstruation at all. She has no comprehension about what will be happening to her body. All she would feel is the discomfort, the stomach cramps and the headaches, the mood swings, the tears, and wonder what is going on.”

Thorpe said an operation would be best for Katie, despite the initial pain it would cause.

She added: “The short-term pain and discomfort we can manage with painkillers. We will be able to manage that pain much better than menstruation once a month, when Katie cannot tell us ‘I’m in pain.’”

So the solution is to put her through severe pain now to spare her cramping later? Can’t you give her painkillers once a month later, or Depo shots, or what have you? Something just seems sort of off to me with this whole thing.

I don’t want to minimize the burden that Allison Thorpe will have in caring for Katie over a lifetime, nor her awareness of Katie’s limited ability to comprehend and communicate that she’s in pain. However, given a range of alternatives, I can’t help but think that there’s a pretty big factor of not wanting to deal with the mess every month here.

The question, of course, is whether this decision will be for Katie’s benefit. And I just can’t say for sure, with such limited information. But I can say for sure that this case raises a lot of red flags for me. There’s also the issue of bodily autonomy, which is a particularly fraught subject in the disability-rights context, one that was argued with a great deal of intensity in the case of Ashley, a Seattle girl referred to as a “pillow angel,” whose growth was stunted surgically (which included the removal of her uterus and breast tissue so that they would not interfere with the hormone therapy or cause her discomfort) so that she could remain a size that would allow her parents to care for her at home and be able to transport her easily so she could be included in family activities. (For some perspectives on the ethics of this choice, see Blue and Planet of the Blind and Lindsay Beyerstein).

Thoughts?

Why is “liberal” a bad word?

Even Justice John Paul Stevens considers himself a conservative. And, you know, I don’t think he’s a far-lefty either, but I’m getting really sick of people identifying as “conservative” because they think it makes them sound more reasonable. Same with “progressive.” Now, I use the term “progressive” too, but I’d never argue with someone who called me a liberal. Just own it, kids. To borrow from JFK:

But if by a “Liberal” they mean someone who looks ahead and not behind, someone who welcomes new ideas without rigid reactions, someone who cares about the welfare of the people — their health, their housing, their schools, their jobs, their civil rights, and their civil liberties — someone who believes we can break through the stalemate and suspicions that grip us in our policies abroad, if that is what they mean by a “Liberal,” then I’m proud to say I’m a “Liberal.”

It shouldn’t be difficult.

But back to JPS. I think Jeffrey Rosen, the author of the piece, hits it on the head here:

It may seem surprising that such a passionate leader of the court’s liberal wing bristles when he is called a liberal. But the fact that Stevens sees himself as a conservatively oriented centrist makes perfect sense given what judicial liberalism has become. There was a time, years ago in the Warren Court era, when liberal justices like Stevens’s predecessor William O. Douglas saw themselves as on a mission to recreate American society along boldly egalitarian lines by discovering newly minted constitutional rights. But for better or worse, this ambitious conception of judicial liberalism has been replaced, like much of political liberalism in America, by a more modest, conciliatory and technocratic sensibility. Even the most liberal justices today have little appetite for the old approach.

Judicial liberalism, in other words, has largely become a conservative project: an effort to preserve the legal status quo in the face of efforts by a younger generation of conservatives to uproot the precedents of the past 40 years. Stevens, who wrote or supported many of those precedents, understandably objects when he feels they are distorted or mischaracterized by justices who were in college when he was appointed to the court. At the same time, merely conserving the achievements of the past is less than what many liberals today ultimately hope for. Can Stevens provide a model for a new vision of legal liberalism in the 21st century?

I also love Stevens for comments like this:

Stevens’s final judicial theme is that the court has an obligation to protect ideals of equality and liberty in light of the nation’s entire history, rather than legalistically parsing the original understanding of the Constitution. As the court moved right during the past 20 years, Stevens increasingly saw it as his role to interpret the Constitution with fidelity to all of American history, rejecting the claim of Justices Antonin Scalia and Clarence Thomas and Judge Robert Bork that the original understanding of the 18th-century framers is all that matters. I noticed a copy of Bork’s book “Slouching Toward Gomorrah” on Stevens’s coffee table and expressed surprise. “He and I were good friends,” Stevens said laughing, and confessing that he hadn’t read the book. But Stevens disagrees with Bork’s exclusive emphasis on original intent: “Originalism is perfectly sensible. I always try to figure out what the original intent was, but to say that’s the Bible and nothing else counts seems to me quite wrong.”