feminist blogs

Overwhelmingly sad news today: Harriet McBryde Johnson has died at age 50.

Image description: The photo shows Johnson in a flowered-print navy dress looking toward the camera. She sits in her wheelchair, though the image is a close-up focusing on her and not the chair. Johnson leans forward, right elbow on knee, chin in right hand. She’s a middle-aged white woman with dark hair in a very long braid trailing over her shoulder and into her lap. She’s not quite smiling, but looking interestedly back at you.

The Post and Courier of Charleston, SC, provides a preliminary notice, with a more formal obituary expected soon (the NYT will have something too, I hear):

Harriet McBryde Johnson, a well-known Charleston disability and civil rights attorney, died Wednesday.

“She worked yesterday. It’s a shock to everybody,” said friend and attorney Susan Dunn.

She was born July 8, 1957, and had been a Charleston resident since age 10.

She told The Post and Courier that she became an attorney because her disability-rights work had taught her something about the impact of law on how people live. . . .

Johnson, who was born with a neuromuscular disease, drew national attention for her opposition to “the charity mentality” and “pity-based tactics” of the annual Jerry Lewis muscular dystrophy telethon. Lewis told the Chicago Tribune he had no intention of making peace with opponents such as Johnson. He likened the idea of meeting with them to entertaining Hezbollah or insurgents in Iraq.

The protests started after Lewis wrote a 1990 Parade magazine article in which he imagined being disabled. Among his conclusions, “I realize that my life IS half, so I must learn to do things halfway. I just have to learn to try to be good at being half a person.”

Some of Johnson’s writings:

Unspeakable Conversations in The New York Times, February 16, 2003 — The magazine cover story featuring her debate with Peter Singer on disability and personhood.

The Disability Gulag in the NYT, November 23, 2003 — On escaping the institutionalization that threatens so many disabled people.

As New Mobility’s Person of the Year in 2004, article by disability activist Mike Ervin

The Way We Live Now: Stairway to Justice in the NYT, May 30, 2004 — On the U.S. Supreme Court ruling on Tennessee v. Lane.

Overlooked in the Shadows in the Washington Post, March 25, 2005 — Harriet on Terri Schiavo. (Same article also published at Slate and in audio at NPR)

Too Late To Die Young: Nearly True Tales From a Life, her memoir, published in 2005. Reviewed by Ragged Edge, excerpted in AARP Magazine, and included in a roundup of memoirs by disabled women at Disability World.

Accidents of Nature, her youth fiction book about a sheltered 17-year old girl with cerebral palsy who attends a summer “Crip Camp” and confronts how her physical differences and the accompanying ableism affect her interactions in the world. She and a friend also confront the ableism itself.

Speaking on video about Medical Ethics at Insights TV for the United States Holocaust Memorial Museum. The first section at the link is “Perspectives on Antisemitism,” with Harriet McBryde Johnson directly below as part of the “Medical Ethics” section. Clicking on the link by Harriet’s photo and below the headline introducing her brings a pop-up window that includes a full transcript. Here’s the direct link to that window and transcript.

Wheelchair Unbound in the NYT, April 23, 2006 — Johnson writes about speaking at the U.S. Holocaust Memorial Museum.

Alas for Tiny Tim, He Became a Christmas Cliché in the NYT, December 25, 2006

A Step-by-Step Guide to Organizing a Protest Against the Jerry Lewis Telethon at disability activist Laura Hershey’s site Crip Commentary

13 Questions at BBC’s Ouch! on May 12, 2008

The Gimp Parade has an index label just for Johnson, and Barry has discussed her writing a number of times at Alas, A Blog.

More links posted as available.

Update: There are links to blog tributes in the comments below, as well as this more complete (and more ableist in language) obit in the Charleston Post and Courier.

Friends of Johnson have created this website dedicated to her life and memory.

Cross-posted at The Gimp Parade

There’s an Australian state socialist magazine called Links, which, for reasons that remain completely opaque to me, seems to believe that the old Movement of the Libertarian Left listserv wants and needs to be buried under reams of its promotional materials. Here’s a choice passage from an interview they ran, which they recently promoted on the list:

Peter Boyle: You’re criticising Labor for not seriously tackling global warming but what do socialists say should be done to address the crisis?

Dave Holmes: What is needed to cope with the crisis is a sharp change of direction. We need an emergency mobilisation of society, a five- or 10-year plan to achieve a drastic reorientation of our economy and use of energy. Anything else is simply not serious.

—Links (2008-04-03): A revolutionary response to the climate change crisis

Everything old is new again.

My own views about global warming, as a phenomenon, are perhaps shockingly ordinary. From what I’ve read I see no reason to doubt that it’s real, and caused largely by human activity, and an increasingly serious concern for many people all over the world. I think that each of us individually, and together with our neighbors, ought to be giving serious thought to the problem, and especially to how hypercentralized, state-supported and state-insulated corporate capitalism (especially the state-regimented, state-subsidized, and state-cartelized fossil fuel industry) structures the problem, and what we can each of us do about both the situation as it affects us, and also about the root causes that drive it.

But when you have a problem created, in large part, by a system of massive government regimentation, privilege, and technocratic planning, in an industry whose exploration and extraction are founded in colonialism and government land-grabs, whose distribution is heavily regulated, concentrated, and promoted by government, and whose protection flows from the barrel of Coalition tanks, I am not entirely convinced that this is a good reason to call for more government regimentation, privilege, and technocratic planning, or for concluding that We need less of [the so-called free market], not more.

I am convinced that people who talk about revolution without understanding the possibility of free action outside the realm of state coercion, who never see any way to approach a pressing social problem except emergency mobilization through lock-step central plans fraudulently passed off as a big society-wide discussion, but in fact handed down in the form of government marching orders—such people are talking with a corpse in their mouths.

Further reading:

• GT 2007-03-22: It’s made of people.
• GT 2004-10-23: What do you get a Universe that already contains everything?

At The Jaded Hippy.

Fifty! How neat.

Feel free to post whatever links you’d like here, including links to your own stuff.

“Promoted” from the comments: The recent Carnival of Feminist Sci-Fi and Fantasy: Part I, Part II, and Part III.

Bean, meanwhile, emailed me telling me to search Google for “matriarchal society.” Here’s what I found:

(Description: Google results page for “matriarchal society.” Google is helpfully asking, “Did you mean: Patriarchal society?”)

In “Blackface/Yellowface/*face” Wheelchair Dancer muses about identity politics, performance arts and disability culture:

Despite years of discrimination and oppression and despite a history that is as appalling as the histories of other minoritized groups, there is no performing arts context for disability face. And even though exaggeration of certain physical aspects of certain impairments, there (perhaps fortunately) has not been a systematic reworking of these localized moments into a “tradition.” Any attempt at disability face would look like a party costume. And that’s kind of the impression I get when I see non-disabled types acting disabled roles.

So, over to you. What would disability face look like? Would you be able to distinguish disability face from disability drag? What would disability drag look like (and here I really do mean *drag,* as opposed to *dress up*). Could PWD with one impairment drag another? Could you drag your own impairment? Or would it have to be non-disabled people dragging disability? When does drag become disability face?

Could there really be a set of performances of disability in which we can separate an actor dressing up as disabled in order to create, with some degree of verisimilitude, a disabled role (because you *know* there are no disabled actors who can do this kind of stuff) from someone in disability face? Would it have to be literally a “face” to be disability face?

Other posts by Wheelchair Dancer on the intersection of race and disability include this, this, this and this.

Cross-posted at The Gimp Parade

At Day In A Wannabe Punk’s Life.

I wasn’t going to offer a Best of 2007 list of my posts this early because I’m an optimist and I like to think genius may strike me in the next three weeks. But for those who may be reading my writing for the very first time, here are five of what I think are my best blog posts of 2007. Plus a couple bonus posts.

Blind Rage and the legacy of Helen Keller — Because I originally began The Gimp Parade to review books about disability, and more importantly, because Blind Rage is a fantastic book by a disabled feminist about the world’s most famous disabled feminist.

I am tired — My expression of how last winter’s Ashley X debate affected me and the disability community online.

Miss Ability lays down on the job — Recently, feminist blogs have written about the beauty contest Miss Landmine Angola. Here’s my take on another beauty pageant for disabled women.

Anniversary — Escaping institutionalization — A personal story of perhaps the biggest drama of my life.

Is Roger Ebert a disability activist? — When I wrote this, I inadvertently prevented comments to the post, so I never learned what others think about Ebert’s “activism.”

Bonus link: Because language use came up in comments to my Alas intro post, here’s a blog entry on that general topic: Linguistically disabled?

And because sometimes I amuse myself, my best blog headline of the year: Yes, the road to hell is paved, but that doesn’t mean it’s accessible

I’d nominate Cilla Sluga’s post at Big Noise about Ruben Navarro as overall Blog Post of the Year.

Who would you nominate? And why?

Cross-posted at The Gimp Parade

Hi all. My name is Kay Olson (known in the past and in the archives here as Blue or Blue Lily) and I write over at The Gimp Parade about disability. I blogged here as a guest last year, but Amp has asked me to join Alas as a regular co-blogger and I’m thrilled to be here.

A little about me: I’m a 39-year-old Minnesotan. I live in the small rural town I was born in, though I went to high school in Naperville, Illinois, and got several college degrees at Arizona State during my 13 years living in Tempe. My degrees are in English, political science and public administration and wherever possible in my studies I explored minority or diversity issues — when disability wasn’t an available option, I studied race or gender or any intersection of these identities.

I was born with a rare progressive neuromuscular condition that falls under the umbrella of muscular dystrophies. I’ve used a wheelchair or scooter for all mobility since 1983 when I was in ninth grade, and for the past two years I’ve had a feeding tube, a trach and used a ventilator full-time for breathing. Technically, I am unemployed, but I spend much of each day with people employed to help me 24/7, training them, managing their care of my needs, helping with scheduling, medical supplies, etc. I am a source of income for two full-time LPNs and up to five part-time LPNs and RNs, not counting the agency I must go through for their state-paid assistance. I live with my parents in a house they were able to build with full accessibility in mind, though I very nearly ended up in a scary nursing home less than two years ago. As you might imagine, if you haven’t already visited my blog, I write a lot about my experiences with the medical community and how they are shaped by politics, bureaucracy and disability stereotypes and prejudice.

My hope here at Alas, other than writing coherently on a regular basis and learning from discussions, will be to bring current disability issues to a wider audience, put them into a feminist context when possible, and promote the writing of other disabled folks online. Mandolin’s lovely October post, “Feminism is not your expectation,” linked my blog as the sole example of disability in feminism but there’s an incredible variety of disabled feminist bloggers out there I’d love to see recognized.

So, although I don’t know if all these bloggers proudly identify as feminists, here is a list of some great disability bloggers that often speak to issues of feminism as well. Although this particular list doesn’t include any non-Western disabled bloggers and very few disabled male bloggers (the latter are either less likely to be making connections between being a woman and disabled, or I am less apt at seeing the connections they make), it is otherwise fairly diverse with regard to age, race, ethnicity, religion, sexual orientation and disability:

Ballastexistenz
Big Noise
Biodiverse Resistance
Diary of a Goldfish
Disability Culture Watch
FRIDA (Feminist Response in Disability Activism)
Ms. Crip Chick
Moving Right Along
My Private Casbah
Pilgrim Steps
Retired Waif
Screw Bronze!
Wheelchair Dancer
Writhe Safely

Thanks for having me, Amp.

Cross-posted at The Gimp Parade

I started a new blog dedicated to Mabel and volunteering at the SFSPCA. If you're interested, you can find it here.

The latest issue is on spinsterhood so I'm gonna have to get myself a hard copy for keepers. And not just coz I'm quoted in it either.

Check it out. Also, if you know where to find a copy in SF let me know, otherwise I'll order it online.